Howdy once again and welcome back
Well at this stage of this day we are still in Brisbane
We have packed up our room at Ronald McDonald house and have checked out and headed over to the Mater Hospital for Jalans appointment at 8:30am with Jalan panicking the whole way saying we are going to be late and trying to get everyone she met to guess where we slept Yep she loves Ronald Mcdonald House
When we get to clinic we let them know we are there and are taken to a room right at the back to wait for our doctors As usual it is pretty bedlam lol
Jalan is taken of for lung function and we sit and wait while different specialists pop their heads in to see if she is there
the social worker drops in to catch up and see how we are travelling and has a chat Then Jalan comes back along with the Occupational therapist and we have a chat about how she is going with physio and everything
Next a doctor we havent met before comes in and introduces himself and asks up a pile of questions then reads his notes and reiterates back to us what we have said to make sure he is clear on it all We are quite impressed with this as half of them dont really listen then seem to make stuff up that we havent said
He then does a thorough check up of Jalan and says slight clubbing on her fingers He then listens to her chest and hears some crackles so off we go to xray to see what is happening
After xray we go back to the room waving to Tina as she had just arrived with her girls for clinic
The dietician comes in and checks out how Jalan is going and gives her student a run down on Jalan as she is nicely pregnant so I dont think she will be in for much longer for a while
The physios come in and do a cough swab Amazingly enough Jalan cooperates nicely for a change and we dont have to restrain her Wooohoooo
Doctor comes in and say that she will have to go in for a admission but it is not urgent and will organise it with our CF nurse
Ruth comes down and says we wont put her in today as there are already too many CFers and other patients in the hospital They look at next week and realise that easter is in the middle of it so therefore Jalan will miss out on a lot of the extra treatments they like to do as they will only have skeleton staff and even though we are quite happy to do some of the physio while she is in they decide not to admit her til the following week which is probably better as she would miss out on the gym sessions and the OT sessions as well
She goes in on the 28th April so will miss out on 2 weeks of school
Due to there being 2 confirmed cases of Swine Flu at her school on Friday the 8th April the doctors advise us not to send her to school for the rest of the term just to be safe
Her nurse comes back in and gives her her flu injection and being brave she just says ouch and then laughs at her brother
After clinic Jalan and Rowan head down to Starlight room while i finish up with the paperwork and stuff
Go down to starlight room and Darren stays with Jalan while I head up and visit another CF mum and her daughter for a while It is good to catch up with them and to know that her daughter is being released on the Wednesday after 3 and a half weeks in hospital
While there i meet another CF mum and her daughter who i have spoken to on facebook but had never met before
They head out for coffee and i head of to get Darren and Jalan and we head to the car
As we get to the elevator i meet Tina and her daughter again so Darren and Jalan go to Macdonalds for lunch and Rowan and I join Tina and Jessika at Subway for lunch
We sit and have a good chat then it is time for her to go pick her other daughter Isabella up and Darren picks me and Rowan up and we head of home
Stop at my dads on the way home for a visit and a cuppa then head home to Toowoomba
After settling in i log on my computer and todays task is
Organize Your Shoes
Well due to the fact we had done part of the Organise your laundry this task was pretty easy as the shoes are in the laundry too so it all is becoming one huge task
Neaten up the shoes quickly and then settle down to relax and catch up on my facebook games
Head of to bed and drift of to dreamland
Sayonara
Luv Deb
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